Those most affected by AIDS don't control research dollars

June 11, 2006
BY MONROE ANDERSON. Copyrightby The Chicago Sun Times


When AIDS was first diagnosed 25 years ago, it wore a gay, white male face. Today that face is black and poor. Africa, which has slightly more than one-tenth of the world's population, accounts for nearly two-thirds of those living with HIV/AIDS worldwide.

In the United States, the numbers for African Americans are devastating just the same. Blacks make up slightly more than 12 percent of the population, but account for more than 70 percent of all new HIV infections and more than half of all AIDS diagnoses.

In Illinois, African Americans are affected by HIV/AIDS more than any other group. Though African Americans make up 15 percent of the state's population, in 2004 they accounted for more than half of the reported HIV cases. Among all women who reported HIV infection last year, 70 percent were African American, and between both sexes, 46 percent were African American. Chicago's South and West Sides are home to most of the state's blacks who are living with the virus.

This being the case, logic might dictate that the money follow the numbers. But life isn't logical or fair, and that's not how the funding fared. Those who command the lion's share of the money, and dictate how the disease will be treated, prevented and fought, are reflecting the old face of AIDS -- not the new.

Over the years, AIDS has become big business. Treatment costs $1,200 to $3,600 a month per person. The old heads fight for funds so they can continue to do what they do and maybe more. Take Howard Brown Health Center. Boasting an annual budget of $12,420,000, the Midwest's largest lesbian, gay, bisexual and transgender organization is so flush with funding that it has set up an HIV testing program in China. Across town, the Let's Talk, Let's Test Foundation, a black AIDS awareness organization on the South Side, scrapes by on an annual budget that is exactly $12 million less.

"Funding doesn't traditionally go to black organizations in the same amount it does to other communities," asserts Lloyd M. Kelly, executive director of the foundation. "We have got to be included in the decision-making process."

With the potent combination of a voice and a multimillion-dollar budget at stake, do-gooding is a habit that's hard to kick. But no matter how good-willed, white organizations don't do as well on Chicago's South or West sides as they do on the North because they aren't as familiar with the black community. A while back, the Howard Brown center considered coming to the South Side before meeting resistance from black organizations suspicious that it was setting up stakes not as missionaries but as mercenaries.

The health center's services might have been useful because many African Americans still won't face the facts about the AIDS epidemic. "The black community is socially conservative," explains Rae Lewis-Thornton, who says AIDS still has a negative connotation among African Americans that "leaves us paralyzed."

You get AIDS "because of your behavior," she said. And, that behavior -- intravenous drug use, gay sex, unprotected sex -- is not acceptable to middle-class, morally right African Americans. "The stigma that's attached to the disease is killing us."

For the past 13 years, Lewis-Thornton, who was diagnosed with AIDS in 1986, has been speaking out against that stigma. At the peak in 1993, she was speaking three to five times a week. Those engagements are now three to five a month. But after years of basically ignoring the problem, the mainstream black organizations are now beginning to make an about-face. Next month she keynotes at the NAACP's 97th Annual Convention.

This latter-day move by the venerable civil rights organization just might be the saving grace. An in-your-face approach will address the AIDS epidemic in the black community much more effectively than playing peek-a-boo.